2020 International Association for Chronic Fatigue Syndrome/Myalgic Encephelomyelitis (IACFS/ME)

Friday, August 21, 2020


This conference has already taken place.


Stony Brook University - Stony Brook, NY
1 Day Conference August 21st, 2020
4.00 AMA PRA Category 1 Credit Hours

Description

ME/CFS is a chronic, complex, disabling condition which affects millions of people worldwide, often beginning during adolescence or early adulthood. Because most medical schools and educational resources do not cover ME/CFS adequately, patients are often met with skepticism and up to 90% of those afflicted remain undiagnosed or are misdiagnosed. Even when patients are diagnosed, healthcare providers often do not feel confident about managing their condition. Finally, accumulating evidence has resulted in a recent sea change in the standard of care: graded exercise therapy (GET) ad cognitive behavioral therapy (CBT) are no longer considered to be effective and may even cause harm. For these reasons, healthcare professionals would benefit both from basic education about ME/CFS as well as updated information regarding treatment and clinical care. 

Dates and Times

Start: 8/21/2020 10:00 AM
End: 8/21/2020 3:00 PM

Objectives

  • Translate insights/lessons learned form patients developing ME/CFS after Severe Acute Respiratory Syndrome (SARS, a coronavirus) to the COVID-19 pandemic.
  • Assess study protocols intended to track post COVID-19 ME/CFS cases or to describe the course of COVID-19 infections in ME/CFS patients.
  • Treat patients effectively and safely with low-dose naltrexone, oral rehydration solution, and behavioral self-management techniques.
  • Explain how immunological, autonomic, and metabolic dysfunction contribute to the pathophysiology of ME/CFS and might serve as biomarkers.
  • Develop an approach to managing homebound and severely affected ME/CFS patients.  
  • Discuss how integrated, cross-disciplinary, and international research/clinical networks might accelerate clinical and scientific progress. 

Agenda


Speakers

  • Dr. James Baraniuk
    • Heart Rate Variability in Exercise-Induced Postural Tachycardia (START) and POTS
  • Dr. Lily Chu
    • Closing Summary
  • Dr. Fred Friedberg
    • Why Patients Improve. Why They Get Worse. Model vs. Data in ME/CFS.
  • Dr. Leonard Jason
    • What Do We Know About Risk Factors for Developing COVID-19 and the Aftermath of this Disease
  • Ms. Caroline Kingdon
    • Health Care Responsibility and Compassion - Visiting the Housebound Patient Severely Affected by ME/CFS
  • Dr. Eliana Lacerda
    • Longitudinal Assessment of Clinical Severity Indicators and Determinants of Quality of Life in People with ME/CFS: A Prospective Cohort Study in the UK ME/CFS Biobank (UKMEB)
  • Dr. Rhonda Jane McKay
    • Low Dose Naltrexone in ME/CFS and FM - the Vancouver Experience
  • Dr. Marvin Medow
    • The Benefits of Oral Rehydration on Orthostatic Intolerance in Children with Postural Tachycardia Syndrome
  • Mr. Daniel Missailidis
    • Dysregulation of Mitochondrial Function and Fuel Preferences in ME/CFS Lymphoblasts
  • Dr. Harvey Moldofsky
    • Does Chronic Fatigue Syndrome Follow Acute SARS Disease If so, why?
  • Dr. Luis Nacul
    • The Impact of COVID-19 on the Risk and Prognosis of ME/CFS
  • Dr. Ina Katrine Pettersen
    • Defective Energy Metabolism in ME/CFS
  • Ms. Violetta Renesca
    • The Effect of Self-Management Group Program on Health Status, Fatigue Severity, and Self-Efficacy in Patients with ME/CFS
  • Dr. Wakiro Sato
    • Immune Dysregulation with Deviated B Cell Receptor Repertoire in ME/CFS
  • Dr. Mathew Schu
    • mapMECFS: A Myalgic Encephalomyelitis Focused Data Portal Supporting Data Discovery Across Multiple Biological Disciplines
  • Dr. Ronald Tompkins
    • Conversion of COVID-19 patients to people with ME/CFS
  • Mr. Ryan Whelan
    • ME/CFS and Autoimmune Associated Small-Fiber Neuropathy
  • Dr. Sadie Whittaker
    • Understanding Susceptibility or Resilience to Chronic Effects of COVID-19 and Deepening Our Understanding of ME/CFS

Panels

  • Questions and Answers #1 - COVID-19
    • Dr. Leonard Jason
    • Dr. Harvey Moldofsky
    • Dr. Luis Nacul
    • Dr. Ronald Tompkins
    • Dr. Sadie Whittaker
  • Questions and Answers #2 - Immunology/Metabolism/Heart Rate Variabilty
    • Dr. James Baraniuk
    • Dr. Fred Friedberg
    • Dr. Ina Katrine Pettersen
    • Dr. Wakiro Sato
  • Questions and Answers #3 - Treatment
    • Dr. Rhonda Jane McKay
    • Dr. Marvin Medow
    • Ms. Violetta Renesca
  • Questions and Answers #4 - Research/Clinical Networks
    • Ms. Caroline Kingdon
    • Dr. Eliana Lacerda
    • Dr. Mathew Schu
  • Questions and Answers #5 - Immunology/Metabolism
    • Mr. Daniel Missailidis
    • Mr. Ryan Whelan

Location

Stony Brook University
100 Ncolls Rd - Virtual
Stony Brook, NY 11794

Accreditation

The School of Medicine, State University of New York at Stony Brook, is accredited by the Accreditation Council for Continuing Medical Education to provide continuing medical education for physicians.

The School of Medicine, State University of New York at Stony Brook designates this live activity for a maximum of 4.00 AMA PRA Category 1 Credit(s) . Physicians should only claim the credit commensurate with the extent of their participation in the activity.

Give us a call
(631) 444-2094
Office of Continuing Medical Education
Renaissance School of Medicine at Stony Brook University
HSC, Level 2, Room 142
Stony Brook, New York 11794-8222